Specialised Introductory Projects
Project Name: Patient-important outcomes in nephrology evaluation and research (PIONEER)
The research project will be undertaken at the Centre for Kidney Research at the Children’s hospital at Westmead
For more information contact: Dr. Germaine Wong or Dr. Allison Tong
Description of Project:
The aims of this project are to elicit clinical and non-clinical outcomes that are important and relevant to patients on renal replacement therapy, and assess patients’ preferences for these outcomes and the relative importance of outcomes in nephrology research.
Examples
- Immunosuppressant regimens in kidney transplantation
- Preferences for cancer screening
- Peritonitis treatment and prophylaxis
- EPO vs. blood transfusion
- Oral iron vs. iron infusion
What this project involves
- Systematic review of qualitative and quantitative research on patient-centred outcomes and outcomes reported in nephrology research
- Combined focus and nominal groups with patients
- Discrete choice experiments to elicit patient preferences




