What do we do?
We help kids like Bailey & Satria
6 weeks into his life young Bailey began to swell up - so much so that his bellybutton stuck out like a sore thumb. It was later found that Bailey’s particular genetic combination meant that he was 1 in 10,000 people in the world to be diagnosed with Congenital Nephrotic Syndrome. This is a very rare disorder passed down through generations.
Ever since they can remember Satria’s younger siblings, a sister and two brothers, have prayed nightly with their parents for their big brother’s health. It wasn’t until late last year that their prayers were finally answered. After countless relapses, years of hospital care and what seemed like endless amounts of medication (up to 20 tablets a day at one stage), Satria’s mother Joanne gave him the ultimate gift – the donation of one of her kidneys.