Where we are
Centre for Kidney Research
Children's Hospital at Westmead
Locked Bag 4001 Westmead
NSW 2145 Australia
Tel: +61 2 9845 1469
Fax: +61 2 9845 3038
Email: ckr@chw.edu.au

What's new?
Sept 2007
Web site updates for:
. Current projects
. Staff
. Publications
. Conference presentations
. Grants

Support for parents of children with chronic kidney disease

Aim: The study aims to understand the intrapersonal, interpersonal and external experiences and needs of parents who have children with chronic kidney disease. More broadly, the study will examine the impact of the child's chronic kidney disease on the lives of the parents; provide insight into the common concerns and issues faced by parents, and compare parent experiences across the spectrum of chronic kidney disease.

Description: Interviews will be conducted with approximately 30 parents of children in the following stages of chronic kidney disease: predialysis (only Stage II - IV: children who will progress to dialysis and transplant) dialysis (hemodialysis, peritoneal dialysis) and transplant. The interviews will ask participants about their personal experiences of caring for their child and family, including the needs they had. Participants will be accessed through hospital departments caring for children with chronic kidney disease.

In-depth interviews will also be conducted with approximately 20 health professionals caring for children with chronic kidney disease and approximately 20 representatives of kidney-related associations. The interviews will explore respondents' perceptions about parental experiences and needs based on their own encounters with multiple parents.

Staff